Posted: May 15, 2012 5:05 am
Just to add, the medical work doesn't give this much attention because it forces them to admit they don't know, it's not sexy (no running sores, or deformed body parts) and it's befuddling -- once they fix one thing that doesn't work, something else goes wrong. It's really only the people who have to deal with chronic pain, fatigue, irritable bowel etc. who really know what it feels like. Also pain is relative, some people can deal with it better than others. If you live with it all the time, you are more aware of it and you can't deal with it as well as people who know it's going to pass. So for people with this syndrome, even a headache that can be fixed with an aspirin, seems worse than it does to people who don't ever get headaches and then when they do, and it's related to a cold, they'll go to work without thinking about it. To people like us a headache associated with a cold, and the cold itself, will send us to bed. Or me anyway.