Posted: May 15, 2012 9:19 pm
by Dawn
Great post, Aggie.

I find it hard to deal with the ongoing struggle to set limits and pace myself which seems ridiculous because I have cut so much out of my life to be able to keep working. I have sadly stopped doing lots of things that would bring me pleasure because I only have so much energy and I use it all up before the end of my work day. My husband asks me all the time "what is wrong?" when I have to go lie down after work or limp around when the joint pain is bad. It drives me crazy. I have had this almost 20 years. It has been worse the past 5 years (maybe because of my thyroid). I swear it is like he forgets everyday and acts all surprised that I have a problem. I then find myself trying to behave as if I don't have these problems and do things as if I had no pain and fatigue and I make myself much worse by pushing.